Milestones

Tomorrow afternoon will mark a big fat milestone in our lives. Two more of our five kids will be crossing that stage at their high school graduation. This isn’t the first time we’ve done this. So why am I so overwhelmed with the feels of it all?

Randa is 20. She’s our “special needs” kid and while eligible to stay at the school for one more year before she ages out of their Alternate Curriculum program, she is bored. She wants to graduate NOW. They told us going in that there was going to come a time when she is going to advance past what they are able to teach her. That time has come. Many would argue that she could mainstream into the general education population. That is just not a possibility with her issues. So we’re going to do more Mommy-Randa stuff starting next Fall. We’re going to visit museums and family members around the Metroplex and take some classes at the fabric store and learn to sew and join a water aerobics class. Randa is excited to start the next chapter after Sam Houston High.

Ismail is 18. He, like his older brother before him, seems to be struggling with the excitement of graduating versus the sadness and anxiety of leaving behind all he knows. I am guessing that boys are like this. (I wouldn’t know, having never been a boy.) He is suffering today as he paces around and asks questions to which he already knows the answers. He’s spent a lot of time on the front porch. Being outside calms his nerves. He is still not certain what he’s going to do. He wants to become an electrician and be a man and not have to answer to his parents and buy a car and get a job, and all of the swirling plans that all boys his age have.

But Ismail is still so tender-hearted in so many ways. And his family is all he’s ever known. No matter where we lived on the globe spanning three countries and several states, we’ve always had each other. The idea of moving away to another part of the state to go to school without his safety net is so intriguing and exciting and altogether scary. So he’s put off making firm plans as of yet. He wants to take a little time off and work. And that’s okay. Ismail has always been one who needs to chew on his idea before he spits out his final answer.

And tomorrow as I stand on that stage, holding Randa’s hand to help her to battle back the anxiety as she walks across toward the end of her high school tunnel, I’ll be watching Ismail, one place ahead of her in the alphabet, reaching his. I’m so proud to be their mother.

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Welcome to the Club

My sister called me this morning and asked me to lie to her. I don’t like to lie. I’m not very good at it and I honestly find the truth to be much more incredible, hilarious, and easier to keep up with. But she begged. So I did.

I told her that my husband and I were living the dream in our home with five kids (ages 16, 17, 18, 20, and 21) decorated with hearts, butterflies, and rainbows and that all that stuff we’d heard about how difficult these years would be is just a big box of hot air bought and paid for by pharmaceutical companies pushing their Xanax dreams. I told her that her two lovely early teens would be mature, pleasant, helpful, drama-free, productive members of society all throughout their teen years, just like mine have been and continue to be. I offered her my Groupon savings for unicorn rides at the next Mother-of-the-Year Awards Gala event.

And then I told her that they may want to consider upgrading that wine cellar they have and I’d be her designated driver if she needed to restock. Or I could load all the 12-step program meeting locations into her iPhone next time she came by here.

The truth is Dr. David Walsh wasn’t even remotely exaggerating when he wrote about the whole “teenage brain” thing. They are incapable of making rational and mature decisions. They’re just not equipped to make them. And it requires a hella lot of patience to stand by and point out why the choices they’re making are dumb or not well-thought-out or insane or whatever adjective you want to stick in here.

So, when my sister called and asked me to lie to her about this inevitable phase in her childrearing life, I did. I laughed all the way through it. But I did it because she just needed a little 30-second break from reality. Before hanging up, she said for me to tell my husband hi. He didn’t miss a beat when he replied, “Hi back. And welcome to the club.”

 

Our 10th…and Possibly FINAL Starry Night Prom

The 2017 Starry Night Prom is scheduled for this coming Saturday, April 29th. It is our 10th annual prom…and it may be our last.

This year, Starry Night Prom is drastically underfunded compared to previous years. Will you help our Arlington ISD friends have a magical night at the Starry Night Prom?
Click here if you are feeling like a big giver ——–> and DONATE NOW.

If you own or work for a company that may want to help sponsor Starry Night Prom, we can offer you a tax-deductible receipt, AND for giving $250 or more (money or goods), we can offer you a spot as a NAMED SPONSOR on the back of 300+ t-shirts IF YOU DONATE WITHIN THE NEXT 48 HOURS (that’s when the back of the t-shirt goes to print.) Click on THIS LINK TO DONATE MONEY. If you want to donate in-kind donations, then please either comment below or contact our Vice-President of Donations by emailing her at StarryNightProm@outlook.com and let her know you want to help.

Here’s a list of the specific goods we still need:

  1. SWAG BAG stuffers (use this opportunity to advertise  your company and provide us with logo-bearing items such as lanyards, cups, refrigerator magnets, trading cards, stickers, pens, pennants, hats, shirts, or coupons.) We have 151 bags that need stuffing.
  2. CHOCOLATE FOUNTAIN FOOD: We need chocolate syrup for a chocolate fountain to feed 325 guests and also the foods to be dipped: Strawberries, Bananas, Marshmallows.
  3. CAKES/DESSERTS for 325 guests: Please avoid peanuts and/or nuts of any kind due to allergies of many of our guests. Thanks.
  4. VEGETABLE and POTATO DISH for the meal for 325 guests.
  5. FUNDS TO PAY FOR 300 MYLAR BALLOONS for decorations.
  6. LUNCH for VOLUNTEERS who will be decorating and setting up on Saturday.

For any of the above-listed items, please contact our VP for Donations via email ASAP. You can reach her at StarryNightProm@outlook.com.

PLEASE SHARE THIS POST TO ANYONE WHO MAY HELP OUR 10th STARRY NIGHT PROM TO BE THE BEST YET!

(Click on the SHARE links below to share this post via Facebook, Twitter, or Google+, or you can share the URL via email. Thank you for getting the word out and helping us to host our 10th annual STARRY NIGHT PROM.)

 

Trades of Hope Charity Event

Have you heard of “Trades of Hope?” It’s amazing. This company empowers artisans all over the world and allows them to earn a sustainable living while helping their own communities.

trades-of-hope

Some of these artisans are healed members of leper colonies who would are unable to reenter their own society in order to work. Some have been removed from the slave-trade or sex-trade. Some are in extremely impoverished areas of their country. These artisans are in Kenya, India, Uganda, Haiti, Cambodia, the U.S.A., and others. What do they have in common? Amazing talent in artistry.

How does Trades of Hope help Starry Night Prom? It doesn’t directly. But we really respect the company and what they’re doing. We also truly dig that the Trades of Hope distribution center in Florida hires people to package and ship out the purchases through another non-profit, The Arc. The Arc is for people with Intellectual and Developmental disabilities: Exactly like some of our students who attend Starry Night Prom!

So when Naunie Lobaugh, a compassionate entrepreneur with Trades of Hope, came to us and suggested that we host a fundraiser with her, we were intrigued. Then when she offered to donate to us 100% of her commissions from this fundraiser, we were 100% gratefully intrigued. And here we are. Bringing you the work of some of the most amazing artisans from around the world. Please help 3 different groups with one purchase from this Trades of Hope Charity Event. (Or you know, MANY purchases. You know what your bank account looks like….go ahead. SPLURGE.)

We’re holding this Trades of Hope Party on Facebook. So if you want an invite to this party, hit me up in the comments section below and I will send you an invite. OR…you can click HERE TO SEE THE CATALOG AND ORDER!

If you’re local in the DFW area and would like to see some of these items showcased, then you are cordially invited to the Elks Lodge #2114 at 601 W. Pioneer Parkway, Arlington, TX 76010 this Saturday morning from 10a.m. to 12noon. Naunie will be showing samples of the Trades of Hope items for sale. You can place orders there and there will even be drawings and prizes. Come on out (or online) and SHOP WITH PURPOSE! Support Trades of Hope and Starry Night Prom.

(This fundraiser will be open until 11:59pm on 1 February 2017. That way your purchases will arrive before Valentines Day!)

 

 

 

6 Days Left

Starry Night Prom 2015 SWAG BAGS

These are STARRY NIGHT PROM goodie bags from our 2015 prom. These customized backpacks were donated to us by the Elks Lodge #2114 in Arlington, Texas. We stuffed them full of swag for each of our attendees; AISD High School students with significant disabilities. The swag included a customized Starry Night Prom 20-ounce cup, pens, pencils, keychains, compact mirrors, coupons and gift certificates from many local businesses, toys, stickers, magnets, and other cool items. Each backpack also contained a STARRY NIGHT PROM commemorative t-shirt with all of our big sponsors printed on the back.

So all of that stuff inside the goodie bags? FREE for our students who attend. You know what else is free? The meal for each of them (and for one attending chaperone guest per student,) the prom portrait photography, the prom fun photo booth style photography, the boutonnieres and corsages, the beautiful custom made invitations, the dessert fountain, the DJ and big dance floor where they can dance and have a wonderful time. All of this is paid for by the donations of kind and generous people who want to see these kids have a magical Starry Night Prom.

And even though a lot of the swag, backpacks, venue, services including cooking and catering are donated as in-kind donations, we still need money to pay for the photography, DJ, printing of invitations, shirts, cups, decorations, additional swag, and a large portion of the food items that are purchased each year.

Our ongoing FACEBOOK fundraiser event is still active for 5 more days! Facebook has waived all of their usual fees for registered  501 (C) (3) nonprofit organizations with Facebook pages during the #GivingTuesday fundraiser drive. This means that 100% of all donations made via the Starry Night Prom Facebook page will be donated to our noble cause.

Won’t you please consider donating to Starry Night Prom and give these kids their magical night this Spring 2017? All donations are 100% appreciated. Thank you for your support.

 

 

Starry Night Prom Fundraiser in Progress

Randa and Hamo Prom 2014

So, what’s it been? About 12 minutes since I wrote about Starry Night Prom? I can’t help it. These kids are so stinkin’ precious and seeing them celebrating their prom in a safe and accepting environment is just a truly moving experience.

We are currently in the middle of a Facebook fundraising drive. What’s awesome about this one is that Facebook has waived all of the usual fees they collect during their #GivingTuesday campaign. This means that 100% of all donations contributed through the Facebook fundraiser through 15 December 2016 will go directly to Starry Night Prom. And since Starry Night Prom is completely run on the generosity of others, this is HUGE.

As some of you are not already aware, I’ll explain a little about Starry Night Prom. We are a registered 501-C3 nonprofit organization serving Arlington ISD high school students with significant disabilities. We host an annual prom for these kids and a chaperone and all of it is paid for 100% with donations. So their invitations, corsages and boutonnieres, photographs, food, deejay, and goodie bags complete with commemorative t-shirt (sponsors printed on back) are all FREE. A lot of these kids would have to miss out on their high school prom. There’s usually not a lot of accommodations for those who have feeding tubes, oxygen tanks, wheelchairs, or need for assistance in the bathroom, etc. Starry Night Prom takes all of that kind of stuff and makes it the norm. The social playing field is leveled and everyone is “at home” in their gorgeous ball gowns and tuxedos. Spring 2017 will be our tenth year hosting Starry Night Prom.

Won’t you consider making your #GivingTuesday contribution to Starry Night Prom? Please follow this link for our Facebook Fundraising Campaign———–> CLICK HERE

And if you don’t have a Facebook account or would prefer to donate through a different site, you could follow this link for our YouCaring.com account* by clicking –> HERE. (*Donations to the YouCaring site will have transaction fees added by YouCaring, but will remain open through May 2017.)

Thank you so much for your sponsorship. We also accept In-Kind donations, so please drop me a line in the comments section and I can provide information on how to sponsor us in this way. And for those of you who are in Texas and Louisiana, you can link your Kroger Plus shopping card to Starry Night Prom under their Community Rewards program, so that Kroger will donate to Starry Night Prom with every swipe!

(ALL donations, big and small, money and in-kind, are GREATLY appreciated and tax-deductible.)

THIS IS ONLY A TEST!

Like most of the “popular vote,” our family mourned the election results on November 9, 2016. My 11 year old niece was in tears, asking my sister, “But how could HE be elected? He’s mean. How could America elect a bully to be our next President?” Indeed.

She wasn’t the only kid to react this way. I have friends in Florida, North Dakota, Wisconsin, California, Maryland, New York, Georgia, Arizona and everywhere in between who held their children on Wednesday morning, wiping away tears of confusion and disappointment that someone who bullies others in public and on television and LIVES the example of what they are NOT supposed to be, could be elected to lead our country.

I gave myself that Wednesday (and honestly, the following Thursday and Friday, too) to grieve Hillary Clinton’s loss of the election. And then I chose happy.

My sister has a sign in her kitchen that says: Happiness is a Choice. Of course, she keeps that sign on the counter right next to the knife block. So, I guess if you can’t choose happiness, you can always choose the butcher knife. Still, it’s a choice. I chose happy.

Am I happy that Donald Trump is our President-elect? Hell, no. But I am happy to have the next four years to find someone better to run against him in 2020. (Sidetrack: Wouldn’t that be an awesome campaign slogan? JOAQUIN CASTRO FOR PRESIDENT- Because hindsight is 20/20. I digress.)

Look, I am an American Muslim of Irish descent, married to a naturalized Egyptian. We have a disabled daughter and we live under the poverty level and we don’t have health insurance because it’s not offered at my husband’s job and we fall through the cracks of ACA because our dumbass state officials in Texas decided to “show them” and not expand Medicaid….EVEN THOUGH Texans are still federally taxed. So we’re paying for Medicaid in other states and not insuring the poor in our own. I had EVERYTHING to lose in this election. But I’m choosing happy.

My faith teaches me that I must be PATIENT. I can be patient for 4  years of a Trump administration. I can USE that patient 4 years to write letters, investigate and research better qualified Democrat candidates and help to promote them. If we move NOW and are patient through the next 4 years, we can help put forth far better qualified candidates to win in 202o. Hey, you third party voters. PLEASE, do the same. If you in the Green Party and in the Libertarian Party work hard at finding a better candidate NOW….start fund-raising NOW….to get better candidates than Stein and Johnson…..get the monies needed to build up a great campaign 4 years from now…..I’ll bet you have a shot. Hell, you guys come up with someone better than the Democrat nominee and I’ll vote for him or her. But
ALL of you, Democrats, Greenies, and Libertarians: Let’s start NOW. Let’s get out in front
of whatever is coming down the 2020 Republican turnpike and make some serious changes in our government. Start finding mid-term candidates for your congressional representatives now. Put some effort in early so that you can all make our Congress more honest; more representative of US, the voters. They work for us. Make them earn their pay.

This is a test. ONLY a test. Somebody wanted a big shake up and change to the status quo. They got their wish. Let’s take their wish for change a step further and use the next 4 years to work toward true greatness. We’ll have a lot of pieces to pick up. Maybe we can build something new instead of just putting it all back together again. It’s not over. It’s a bump in the road. We can do this.

It’s NOT a Tantrum

Walking through a supermarket, the severely Autistic person wears gun-range headphones to help block excess noise to protect her highly sensitive hearing from the overwhelming barrage of clanking, banging, muzak, baby cries, squeaky buggy wheels and blips and bloops from cash registers. A woman getting over a cold coughs into her elbow, and the Autistic person’s face grows dark. Her mother notices the scowl and the wincing on her non-verbal daughter’s face. She puts the Cheerios back on the shelf and grabs her daughter’s hands and softly speaks into her face, “Poor lady. She’s sick. Sick people cannot help coughing, honey. It’s okay.”

The mom gently guides her daughter from the cereal aisle and the cussing begins followed by screaming and crying. “Ears hurt! STUPID WOMAN!” People begin to stare. Some people whisper and make angry faces. The screaming continues while the mom gives deep pressure hugs and wipes away tears, speaking gently about good choices and soft voices.

An angry woman walks by with her nearly full buggy with the squeaky wheel and stops to SHUSH! the girl. The mother spins around on her heel and tells the woman she is out of line. “You should shut her up! It’s incredibly rude to the other shoppers for her to be throwing a tantrum in the middle of the supermarket! What is she? Retarded?”

“First, she’s got Autism and she is in distress, NOT that we owe you an explanation. A tantrum is a fit thrown in order to get what one wants. This is an Autistic Meltdown which is brought on by environmental situations. What makes them continue is rude judgmental people like you! Secondly, this is Kroger. If you want quiet, go to the fucking library!” The mother turns her back on the sputtering woman, who has now become just another bit of background noise. The girl continues to cry and loudly repeat the same line from her favorite movie, as though stuck on a loop.

The store manager walks up and smiles. He knows the woman and the daughter, as they are regular shoppers here. He asks if everything is all right. The woman nods that it is. The girl notices the manager’s very large mustache and points at his face. “It’s big whiskers!” she says, wiping away her tears. The man laughs and agrees that they are. The girl smiles and says, “Bye. Come on, Mommy. It’s Cheerios.” The mom grabs the hand of her 20-year old girl and mouths a quick thank you over her shoulder to the manager. She returns to the cereal aisle and adds the Cheerios to the buggy while the girl happily pushes beside her.

 

Judging Books by Covers

The following was written by my friend, Joli Crow. (It’s shared with her permission.) And it speaks volumes as to the body-shaming and judging and the ridiculous lack of manners that seems to be rampant any more. I read this this morning on her Facebook status and the more I read, the more my heart broke for her. I honestly don’t know what I would have done were I to have been in her place. I would like to say that I’d have called him out on it out loud. I’ve done this in defending my daughter during her autistic meltdowns and people are staring or making rude remarks. But I don’t know that I would if I were the target of mean comments and bug-eyed glares.

Joli, you are an amazing woman; a survivor. Keep strong. ~N

****

Dear Mr. Chiseled Jaw,

I heard you this morning. Standing behind me, on your phone. I heard you tell the person on the other end that you can’t stand fat people. I heard you tell them you thought something was wrong with me, because you can see the scars on my arms and chest. I heard you tell them that “a little hard work and some plastic surgery and she MIGHT be a 5 someday.” And the comments about my hair. And the laughing.

A few years, a few months, hell, even a few weeks ago, I would have broken and faltered under your harsh words and judging gaze. I would have gone home, curled up under my blanket, and cried myself to sleep. I would have started comfort eating, or hide myself in a book, or done ANYTHING I could to pretend I never heard you.

But I’m going to tell you something. Are you listening? Probably not, but I’ll tell you anyway. This “fat” body? Carried life inside it. It protected a tiny human, one who now could pick your ass up and toss you aside without a second thought.
This “fat” body? You act like it is unlovable. Yet not only do I have an amazing partner who loves it and all its curves, but I have two children who love to cuddle it; who think my softness is a source of comfort. It’s a body people are not afraid to touch, to hug. It’s a body that has lived.
My scars? The ones you said made me look like a junkie or an AIDS victim? I never chose them. They chose me. Each scar was carefully applied with hate, malice, and savagery. Each BATTLE SCAR is a reminder of each day I have survived; each war I have won. Each scar is a reminder of the victories, both large and small, that I have earned in my life.
I may not be YOUR perfect 10. But I know my worth. I know who I am. I know and love each of my demons. I have survived and I have won!

Today, you could have hurt me. You could have undone all the hard work I have put myself through to love myself more. But you’re not worth it. You are no one to me and I don’t have to answer to you or your opinions of me. Because at the end of the day, are you the one putting food on my table, clothing my children, paying my bills, loving me and each of my scars and every pound of me? Are you the one jumping to my side when I need a friend? Are you the one I turn to for comfort?

NO.

So, have a nice day. Enjoy your life and learn to be a little less of an asshole.

K? Thanks, bye!

From,

The Woman who no longer gives a damn what you think.

PS. I will admit a certain satisfaction when you were refused service because of your statements. Gotta love small towns!