It Doesn’t Mean I Don’t Love You

When a woman decides to leave the business world to stay at home and take care of her family, it is a huge decision.  Sometimes men, and even some women, think that it is a choice that these women come to quite easily; that it is their “nature” to be in the home raising the children.  Perhaps for some, but most of us have usually reached this decision based on how exhausted we are from balancing both home and work fronts, how wasteful it is to spend 3/4 of our paychecks on daycare, and the amount of guilt we deal with by missing all of those “firsts” that our kids experience and the amount of crud they are ingesting because no one has properly swept under the kitchen table in months.

I left my career of seventeen years to stay at home with my five children because of all of those reasons.  And within two months of that income and health insurance loss, we sold everything we owned and bought plane tickets and moved to Greece. A month there was also a bust.  So we used a little of my 401(k) that we withdrew and bought more plane tickets and moved to Egypt.  We bought a little flat and a micro-bus and lived fairly well, for the next twelve years.  But then things changed and I was ready to come back to the United States.

My husband found work in the North Texas area and bought us a little house.  I packed up our stuff, sold all of our furniture and appliances and the flat, and headed for the airport with the kids and all the luggage we could strap onto the micro-bus.  And things were good and three of the five kids have graduated high school with two more cued up to receive diplomas and march on with their lives to “Pomp and Circumstance” as their soundtrack.

But they’re all still living at home and I’m not getting much accomplished anymore.  The list of things to do each day is getting longer for me.  And I still have this lovely linen fabric I bought to make curtains YEARS ago and still haven’t had time to make.  I have two novels and a book of essays that I started but cannot complete because I no longer  have free time to devote to them.  I want to go back to college, even if only online, but cannot justify the financial obligation when I cannot meet the time obligation it would require to get my degree.

I no longer feel fulfilled by completing all of the laundry, dishes, shopping, cleaning, dinner preparation, homework checking, bill-paying, and volunteer work.  I want more. And my husband feels hurt when I tell him that it’s not enough anymore; that I want to work outside the home.  He feels that he is not providing enough for us and that I must prop him up.  While we could definitely benefit from additional income, that’s not the main reason that I want to do it.  It’s about self-fulfillment.

I don’t understand why so many men take it as a slight when their wives want to return to the workforce when their children have grown out of the needy stages.  Perhaps I am too American or Western in my way of thinking, but I believe that this is a necessary step in their upbringing.

If teenagers and young adults are left to meet their own scheduled obligations, learn their own medical history, learn how to manage time and money and make meals for themselves and the family, then they benefit in real-life situations that they will be facing when they leave our home.  If the special needs young adult, who is at home and needs supervision, is looked after by her siblings for a few hours several days a week, the overworked and unpaid mom can get the required respite care she needs.  This can give her the energy to continue with her care giving without the resentment that she may end up feeling if she isn’t ever given any relief or assistance in her duties.

When the SAHM decides that she wants to reenter the workforce, or says that she no longer finds this work fulfilling, it doesn’t mean she won’t care for the family anymore.  Sometimes in our efforts to care for our families we lose our own identities and the lines between individual and the title of “wife” or “mother” become blurred.  It means that she’s been caring for the family for so long that she has not taken the time to care for herself.  Let her do that.  Support her.  It doesn’t mean she doesn’t love you.  It means she needs to love herself, too.

 

 

 

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XX Year Anniversary of XXIX

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I woke up to that awesome “wall of guitars” this morning.  I was intrigued, yet slightly annoyed, that someone was in my bedroom playing a hauntingly echoing version of Metallica‘s “Enter Sandman” while I slept.  Then I remembered that I had changed my ringtone on my cellphone the other day.  So I pulled my phone out of the trash can by my bed where it had fallen last night when I tried to put it on the night table and attempted to say hello.  I heard my brother-in-law’s cheerful voice saying, “Happy birthday.”  I tried to say,  “Thanks.” It sounded more like a grunt, but he interpreted it as “Congratulations! You won the ‘I got to say Happy Birthday first’ game.”  His linguistic skills were spot on.

After he handed the phone of to my sister to claim her second-place finish, and I checked my text message from my brother who technically was first since he texted at 12:18 a.m., I reflected on some things.  Today  is the twentieth anniversary of my twenty-ninth birthday. That’s a lot of 29s.  And I am nowhere close to the goals I’d set for myself when I was a young teenager.  But that’s good. At this point, my career as a “medical examiner who moonlights as a hot bathing suit model” would probably be washed up.  I’ve got a mom-body, complete with extra padding for warm, sincere hugs and my cooking skills are A+ since my food doesn’t taste like medical hand soap and formaldehyde.  I’m good.

Unlike me at the original 29 year mark, I have built my patience up to tolerate early morning phone calls with honest laughter.  I left my not-so lucrative career of seventeen years to become a broke, stay-at-home-mom who blogs and over-volunteers at the school and with a favorite non-profit organization.  On the “How Tidy is My Home” scale, I still only rank about a 6 on average, maybe a 7.5 if I have more than 15 minutes notice that someone is en route to see us.  But as long as we’re not wallowing in filth (read: I’ve mopped once this month but forced the kids to vacuum a few times) and we aren’t qualified to be featured on “Hoarders,” I’m okay with it.

And while I complain about the little things that annoy the crap out of me, like being the chauffeur of shame hauling young adults to and from work, college, high school, and various volunteer and social engagements, I know that I have a great life.  I genuinely LOVE my family and my friends.  (Thanks, Venetia, Sara, and Cindy, by the way.  The three of you have been my first truly best friends (who don’t share a mom with me) in many years and you have no idea how great that feels or how much I appreciate it.)  I have a home that is large enough to house us all comfortably.  My husband works a job where he is home every evening around the same time and no longer has to travel for extended periods.  And we sit down to dinner every single night together. Yes, we eat as a family every day. I have a great life. And I’m so grateful to Allah for providing this.

I have decided to carpe the crap out of this diem.  I’m going to make a B.A.B.B. (that’s Big Ass Birthday Brisket) for dinner and maybe let my daughter help me choose a birthday cake. (It’ll be chocolate so the masses will be happy. I may get myself a lime popsicle or something, so that I will be happy.)  And I will sit back and allow them to do all of the chores for my big, fat celebration of ME.

**The dirty little garden gnome? No. He has no real significance to this story. I just like him and decided he’d make a lovely thumbnail for this blog post.

 

To the Strangers Who Stare and Comment: Get Bent.

I am the parent of a young adult with Autism.  I’m patient. She’s helped me build that patience. But if you are a parent of a young child with Autism and you leave me a comment giving me advice that basically would reinvent my wheel, so help me God, I will reply and make you cry.

I have been dealing with the explosive outbursts, Autistic meltdowns, sensory overload, overstimulation on low pressure days, tactile issues, noise issues, overpowering scents, obnoxious gestures and flight or fight reactions for well over 20 years. I got this. I’m not perfect. But I get HER. And as my friend, Cindy, says all the time, “When you know one person with Autism, you know ONE person with Autism.” Cindy would know. She’s been a teacher for about 13 years, 8 of those with Special Education.  She’s so right. If you intellectually know that every person WITHOUT Autism is a unique individual, then WHY can’t you get that about people WITH Autism?!

Do I seem shout-y and intolerant? I am. I am tired of the looks and the stares and the rude remarks and the presumptuous (albeit well-intended), unhelpful advice from people with ZERO experience with MY kid.

I am one of those parents who, until today, thought that Autism Speaks and other Autism awareness organizations do little to help those of us in the trenches of this nonverbal disability each day. I do not have a puzzle piece bumper sticker or a blue light bulb for the once a year “Blue Out” that some of my other friends put on their porch light. I didn’t “GET IT” until this morning.

While these organizations are working on research to help us understand causes and work on better interventions for Autism, they aren’t really a helpful “go to” resource for parents of older people with Autism who are still hoeing that row for those that follow us.  I’m not at all suggesting that my 21 year old daughter is a pioneer for the AU crowd around here. But I’m telling you that the reactions that she has are less accepted of her than they are for someone with similar disabilities who is 5 years old. And most of us with older kids/young adults are figuring it out as we go along…JUST LIKE ALL OF YOU WITH THE ALLEGEDLY NORMAL KIDS.

Here is the thing, “Normal Parent:”  YOUR kid will one day actually listen to your advice. He will get to do all the “normal” developmental stuff and “normal” school and break the “normal” rules, maybe even getting suspended once in high school for the “normal” prank or fight in the gym.  He’ll graduate from the “normal” or even AP classes and go to a “normal” university or college or trade school.  If I’m lucky, MY kid might work at Target bagging groceries and won’t get put in handcuffs by the cops when she’s fighting to run away from them after they’re called because she is screaming that the music is too loud.

But you know what?  “Normal is just a setting on the dryer!” (That’s another of Cindy’s catch phrases that she uses on me almost weekly, as she talks me off another emotional ledge.)  And the need for organizations like Autism Speaks, is to help the “normal” people, like you;  To assist you in understanding that not everyone is physically ABLE to understand your social cues and common courtesies that, when you think about it logically, really make very little sense at all.  Since when does “Excuse me,” translate to the rest of the world as “Step aside quickly. I want to push past you?” It is actually just a catch-all phrase that is  “said politely in various contexts, for example when attempting to get someone’s attention, asking someone to move so that one may pass, or interrupting or disagreeing with a speaker; or said when asking someone to repeat what they have just said.”  (**according to Bing’s definition.)

So when we are paying for our cup of hot chocolate at the 7-11 and take that entire extra 2.6 seconds to place 25 cents change inside a purse and zip it closed before attempting to leave the store, the words, “Excuse me,” have little meaning to my Autistic daughter.  The old hag who shoved past her while saying them meant, “I’m an impatient old bat in dire need of lottery tickets and another pack of cigarettes. Now move your ass!”

So, now that she has been pushed and hurried, she is holding her hot chocolate in one hand and my hand with the other.  As we attempt to exit the store, a young man grabbed the door handle and swung it open widely.  But instead of waiting for us to step through it, he pushed into me as he tried to squeeze past, causing me to bump into my daughter, which caused her to spill hot chocolate onto her hand. THEN he had the nerve to be upset when she screamed from the burn on her hand and turned around and shouted, “YOU FUCK!” at him. He started to argue but I said, “She has Autism….she doesn’t mean,” and then I stopped myself. You know what, old hag at the counter and boy who can’t wait for 1 second to enter a store before the doorway is cleared?  She’s right. You ARE fucks.

Autism awareness organizations are around because YOU “normal” people are too ignorant to recognize disabilities that are not glaring in your faces.  How many “normal” people walk around 7-11 wearing gun range headphones to cut down the noise around them?! OBVIOUSLY, there’s an issue there and this person doesn’t fall into your definition of “normal.”  Do you ordinarily push past the guy with the white cane because he’s taking an extra second to get through the door he can’t see?  What about the people who are speaking in sign language to one another?  Do you get pissy and shove past them when they don’t hear your lame “excuse me” at the check out lane?

Patience is something that everyone could use.  Do I sound impatient?  Well, I am. But this is due to YEARS of having complete strangers walk up and “shush” my kid who is screaming because the lights are too bright and some assistant manager decided to crank up the music playing on the PA system at the grocery store.  I will maintain my usual demeanor, most days, in public but I will no longer apologize to people for my daughter’s outbursts when 9 times out of 10 they contribute to them.  Just because she cannot verbalize what is bothering her does not mean that she is out of line for feeling bothered.  Attempting to understand why someone is upset is a sign of maturity.

I’m not expecting the world to bend over backwards and allow the AU crowd to do whatever they want whenever they want.  All I’m asking is that you take a second before reacting to their Tourette’s-like responses and decide whether that person is in crisis. Sometimes it’s truly just a disability.

Today Should be an International Holiday

So, the solar eclipse of 2017 here in North Texas sort of resembled a greenish-brown pre-tornado overcast sky.  I was not impressed. Of course, I would have been had I lived in Oregon.  But you know.  I don’t.  I live near Six Flags and Globe Life Park where the Texas Rangers play…oh, and that stupid-looking stadium that looks like the Dallas Cowboy’s Gargantuan White Nipple that can be seen on the horizon from 12-miles away.

The coolest thing about today has NOTHING to do with making solar glasses out of cereal boxes.  MY HIGH SCHOOLERS WENT BACK TO SCHOOL TODAY!!!  I’m enjoying the quiet of my 3 college-age kids and my husband.  I caught up on laundry, made my bed, downloaded some apps onto my computer and took care of some health care stuff online for several of us.  This is HUGE, y’all.  I was only interrupted once to help my husband trim his beard…and then he decided to just shave it all off so I was dismissed back to my solitude of peace, with no having to break up fights about whose turn it is to play on the laptop. WOOOOHOOOOO!

The first day of school should literally be an International Holiday.  And all mom’s who show up at any diner or coffee shop or convenience store with a stupid grin and looking slightly frazzled from getting those students off to school on that first day, should receive a big cup of coffee, tea, or whatever they want for free.

I’m going to live it up for the next hour before they lumber off the bus and raise the decibel levels up in here.  It’s party time.

Mothers and Daughters

It’s been relatively quiet this Summer.  Mostly because the two youngest have been taking accelerated courses (Physics and Economics/US Govt) to get them out of the way for the Fall. The two older boys have been working and Randa and I have been sleeping in a lot and just hanging out.

But there are only two days left of Summer school and then Sam is off to visit her grandparents for a while.  And I’ll be lost without her.  The boys will either be working or sitting in front of their devices all day/night.  Randa will be here hanging with me like usual.  But our relationship is different than mine and Sam’s.  Randa’s is more physical with hugs or shouting, whichever she needs to do at the time.  I like Randa.  She likes me, most of the time.  But there’s that level of dependency and seemingly a boundary that isn’t crossed.  It’s not for a lack of wanting to be closer.  It’s just the dynamic of us.

Sam is actually more like a friend.  We have the mother-daughter relationship that is so close to friendship that we actually enjoy each other’s company.  It’s not just me wanting to hang out with her.  She actually enjoys being around me and has farted off friends to stay home with me.  I love that.  It’s the type of mother-daughter I longed for with my own mom but never really had.  I’m so happy that I have it with my daughter.

And I’m going to miss the crap out of her next week.

Ramadan 1438 (2017)

Well, in sticking with my usual Ramadan traditions, breakfast was LATE on the first night this year, too. I had big plans, people. BIG plans. We had the dates soaking in milk for about 13 hours. We had freshly made mango juice. We had hummous and baba ghanouj and I even remembered to have my husband bring bread home with him…because I always forget it. We had the coffee pot set up and ready to brew. I had found a recipe for making spiral-cut parmesan baked potatoes and had them ready to go. I had pulled the ribeyes out of the freezer before noon to thaw and since it was 40 billion degrees outside, I decided we’d grill them in the oven instead of any of that charcoal grill nonsense. And I made Brussels sprouts. I should have gone with the charcoal grill.

The stupid meat would not freaking cook. They’re steaks. I’ve made them at least 4000 times in my life time. WHY? What gives? The physics in my oven just decided to go on strike? AUGH! I don’t know what was going on there….but it was terrible. We had all the sides and juices and salads. But no meat until 9:00 when they finally finished cooking. And they were terrible. I was so sad that, of all the traditions, being late with dinner on the first night of Ramadan was the one that I managed to keep. *sigh* Oh, well.

Today I took the meat out of the freezer at 10 a.m. I’m going to start cooking at 3 p.m. And all I’ll have left 40 minutes or so before the sundown is to make a pot of rice and to turn the coffeepot on. Now if I could just remember this lesson on the first night of Ramadan 1439, I’ll be in good shape.

Ramadan Mubarak.

رمضان مبارك

 

Welcome to the Club

My sister called me this morning and asked me to lie to her. I don’t like to lie. I’m not very good at it and I honestly find the truth to be much more incredible, hilarious, and easier to keep up with. But she begged. So I did.

I told her that my husband and I were living the dream in our home with five kids (ages 16, 17, 18, 20, and 21) decorated with hearts, butterflies, and rainbows and that all that stuff we’d heard about how difficult these years would be is just a big box of hot air bought and paid for by pharmaceutical companies pushing their Xanax dreams. I told her that her two lovely early teens would be mature, pleasant, helpful, drama-free, productive members of society all throughout their teen years, just like mine have been and continue to be. I offered her my Groupon savings for unicorn rides at the next Mother-of-the-Year Awards Gala event.

And then I told her that they may want to consider upgrading that wine cellar they have and I’d be her designated driver if she needed to restock. Or I could load all the 12-step program meeting locations into her iPhone next time she came by here.

The truth is Dr. David Walsh wasn’t even remotely exaggerating when he wrote about the whole “teenage brain” thing. They are incapable of making rational and mature decisions. They’re just not equipped to make them. And it requires a hella lot of patience to stand by and point out why the choices they’re making are dumb or not well-thought-out or insane or whatever adjective you want to stick in here.

So, when my sister called and asked me to lie to her about this inevitable phase in her childrearing life, I did. I laughed all the way through it. But I did it because she just needed a little 30-second break from reality. Before hanging up, she said for me to tell my husband hi. He didn’t miss a beat when he replied, “Hi back. And welcome to the club.”

 

Trades of Hope Charity Event

Have you heard of “Trades of Hope?” It’s amazing. This company empowers artisans all over the world and allows them to earn a sustainable living while helping their own communities.

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Some of these artisans are healed members of leper colonies who would are unable to reenter their own society in order to work. Some have been removed from the slave-trade or sex-trade. Some are in extremely impoverished areas of their country. These artisans are in Kenya, India, Uganda, Haiti, Cambodia, the U.S.A., and others. What do they have in common? Amazing talent in artistry.

How does Trades of Hope help Starry Night Prom? It doesn’t directly. But we really respect the company and what they’re doing. We also truly dig that the Trades of Hope distribution center in Florida hires people to package and ship out the purchases through another non-profit, The Arc. The Arc is for people with Intellectual and Developmental disabilities: Exactly like some of our students who attend Starry Night Prom!

So when Naunie Lobaugh, a compassionate entrepreneur with Trades of Hope, came to us and suggested that we host a fundraiser with her, we were intrigued. Then when she offered to donate to us 100% of her commissions from this fundraiser, we were 100% gratefully intrigued. And here we are. Bringing you the work of some of the most amazing artisans from around the world. Please help 3 different groups with one purchase from this Trades of Hope Charity Event. (Or you know, MANY purchases. You know what your bank account looks like….go ahead. SPLURGE.)

We’re holding this Trades of Hope Party on Facebook. So if you want an invite to this party, hit me up in the comments section below and I will send you an invite. OR…you can click HERE TO SEE THE CATALOG AND ORDER!

If you’re local in the DFW area and would like to see some of these items showcased, then you are cordially invited to the Elks Lodge #2114 at 601 W. Pioneer Parkway, Arlington, TX 76010 this Saturday morning from 10a.m. to 12noon. Naunie will be showing samples of the Trades of Hope items for sale. You can place orders there and there will even be drawings and prizes. Come on out (or online) and SHOP WITH PURPOSE! Support Trades of Hope and Starry Night Prom.

(This fundraiser will be open until 11:59pm on 1 February 2017. That way your purchases will arrive before Valentines Day!)

 

 

 

THIS IS ONLY A TEST!

Like most of the “popular vote,” our family mourned the election results on November 9, 2016. My 11 year old niece was in tears, asking my sister, “But how could HE be elected? He’s mean. How could America elect a bully to be our next President?” Indeed.

She wasn’t the only kid to react this way. I have friends in Florida, North Dakota, Wisconsin, California, Maryland, New York, Georgia, Arizona and everywhere in between who held their children on Wednesday morning, wiping away tears of confusion and disappointment that someone who bullies others in public and on television and LIVES the example of what they are NOT supposed to be, could be elected to lead our country.

I gave myself that Wednesday (and honestly, the following Thursday and Friday, too) to grieve Hillary Clinton’s loss of the election. And then I chose happy.

My sister has a sign in her kitchen that says: Happiness is a Choice. Of course, she keeps that sign on the counter right next to the knife block. So, I guess if you can’t choose happiness, you can always choose the butcher knife. Still, it’s a choice. I chose happy.

Am I happy that Donald Trump is our President-elect? Hell, no. But I am happy to have the next four years to find someone better to run against him in 2020. (Sidetrack: Wouldn’t that be an awesome campaign slogan? JOAQUIN CASTRO FOR PRESIDENT- Because hindsight is 20/20. I digress.)

Look, I am an American Muslim of Irish descent, married to a naturalized Egyptian. We have a disabled daughter and we live under the poverty level and we don’t have health insurance because it’s not offered at my husband’s job and we fall through the cracks of ACA because our dumbass state officials in Texas decided to “show them” and not expand Medicaid….EVEN THOUGH Texans are still federally taxed. So we’re paying for Medicaid in other states and not insuring the poor in our own. I had EVERYTHING to lose in this election. But I’m choosing happy.

My faith teaches me that I must be PATIENT. I can be patient for 4  years of a Trump administration. I can USE that patient 4 years to write letters, investigate and research better qualified Democrat candidates and help to promote them. If we move NOW and are patient through the next 4 years, we can help put forth far better qualified candidates to win in 202o. Hey, you third party voters. PLEASE, do the same. If you in the Green Party and in the Libertarian Party work hard at finding a better candidate NOW….start fund-raising NOW….to get better candidates than Stein and Johnson…..get the monies needed to build up a great campaign 4 years from now…..I’ll bet you have a shot. Hell, you guys come up with someone better than the Democrat nominee and I’ll vote for him or her. But
ALL of you, Democrats, Greenies, and Libertarians: Let’s start NOW. Let’s get out in front
of whatever is coming down the 2020 Republican turnpike and make some serious changes in our government. Start finding mid-term candidates for your congressional representatives now. Put some effort in early so that you can all make our Congress more honest; more representative of US, the voters. They work for us. Make them earn their pay.

This is a test. ONLY a test. Somebody wanted a big shake up and change to the status quo. They got their wish. Let’s take their wish for change a step further and use the next 4 years to work toward true greatness. We’ll have a lot of pieces to pick up. Maybe we can build something new instead of just putting it all back together again. It’s not over. It’s a bump in the road. We can do this.

It’s NOT a Tantrum

Walking through a supermarket, the severely Autistic person wears gun-range headphones to help block excess noise to protect her highly sensitive hearing from the overwhelming barrage of clanking, banging, muzak, baby cries, squeaky buggy wheels and blips and bloops from cash registers. A woman getting over a cold coughs into her elbow, and the Autistic person’s face grows dark. Her mother notices the scowl and the wincing on her non-verbal daughter’s face. She puts the Cheerios back on the shelf and grabs her daughter’s hands and softly speaks into her face, “Poor lady. She’s sick. Sick people cannot help coughing, honey. It’s okay.”

The mom gently guides her daughter from the cereal aisle and the cussing begins followed by screaming and crying. “Ears hurt! STUPID WOMAN!” People begin to stare. Some people whisper and make angry faces. The screaming continues while the mom gives deep pressure hugs and wipes away tears, speaking gently about good choices and soft voices.

An angry woman walks by with her nearly full buggy with the squeaky wheel and stops to SHUSH! the girl. The mother spins around on her heel and tells the woman she is out of line. “You should shut her up! It’s incredibly rude to the other shoppers for her to be throwing a tantrum in the middle of the supermarket! What is she? Retarded?”

“First, she’s got Autism and she is in distress, NOT that we owe you an explanation. A tantrum is a fit thrown in order to get what one wants. This is an Autistic Meltdown which is brought on by environmental situations. What makes them continue is rude judgmental people like you! Secondly, this is Kroger. If you want quiet, go to the fucking library!” The mother turns her back on the sputtering woman, who has now become just another bit of background noise. The girl continues to cry and loudly repeat the same line from her favorite movie, as though stuck on a loop.

The store manager walks up and smiles. He knows the woman and the daughter, as they are regular shoppers here. He asks if everything is all right. The woman nods that it is. The girl notices the manager’s very large mustache and points at his face. “It’s big whiskers!” she says, wiping away her tears. The man laughs and agrees that they are. The girl smiles and says, “Bye. Come on, Mommy. It’s Cheerios.” The mom grabs the hand of her 20-year old girl and mouths a quick thank you over her shoulder to the manager. She returns to the cereal aisle and adds the Cheerios to the buggy while the girl happily pushes beside her.