Starry Night Prom 2018 Fundraiser Kickoff!

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Starry Night Prom is about to kick off its 2018 Fundraising efforts by participating in the #GivingTuesday fundraiser.  We have updated our own fundraiser on the YouCaring website and we’ve set up our #GivingTuesday fundraiser on Facebook. And guess what!  Once again, Facebook is waiving their usual fees for all donations made from 12:00am EST on November 28, 2017 to 11:59pm HST on November 28, 2017.  Isn’t that awesome?  But wait!  That’s not all!

On #GivingTuesday, Facebook and the Bill & Melinda Gates Foundation will be matching up to $2 million of funds raised on Facebook for US nonprofits.  For more information about the matching, please click RIGHT HERE TO THE GivingTuesday Information on Facebook.   

Please donate to this magical cause and level the social playing field for some of Arlington’s most amazing students.  Support the Starry Night Prom! Thank you.

 

 

 

To the Strangers Who Stare and Comment: Get Bent.

I am the parent of a young adult with Autism.  I’m patient. She’s helped me build that patience. But if you are a parent of a young child with Autism and you leave me a comment giving me advice that basically would reinvent my wheel, so help me God, I will reply and make you cry.

I have been dealing with the explosive outbursts, Autistic meltdowns, sensory overload, overstimulation on low pressure days, tactile issues, noise issues, overpowering scents, obnoxious gestures and flight or fight reactions for well over 20 years. I got this. I’m not perfect. But I get HER. And as my friend, Cindy, says all the time, “When you know one person with Autism, you know ONE person with Autism.” Cindy would know. She’s been a teacher for about 13 years, 8 of those with Special Education.  She’s so right. If you intellectually know that every person WITHOUT Autism is a unique individual, then WHY can’t you get that about people WITH Autism?!

Do I seem shout-y and intolerant? I am. I am tired of the looks and the stares and the rude remarks and the presumptuous (albeit well-intended), unhelpful advice from people with ZERO experience with MY kid.

I am one of those parents who, until today, thought that Autism Speaks and other Autism awareness organizations do little to help those of us in the trenches of this nonverbal disability each day. I do not have a puzzle piece bumper sticker or a blue light bulb for the once a year “Blue Out” that some of my other friends put on their porch light. I didn’t “GET IT” until this morning.

While these organizations are working on research to help us understand causes and work on better interventions for Autism, they aren’t really a helpful “go to” resource for parents of older people with Autism who are still hoeing that row for those that follow us.  I’m not at all suggesting that my 21 year old daughter is a pioneer for the AU crowd around here. But I’m telling you that the reactions that she has are less accepted of her than they are for someone with similar disabilities who is 5 years old. And most of us with older kids/young adults are figuring it out as we go along…JUST LIKE ALL OF YOU WITH THE ALLEGEDLY NORMAL KIDS.

Here is the thing, “Normal Parent:”  YOUR kid will one day actually listen to your advice. He will get to do all the “normal” developmental stuff and “normal” school and break the “normal” rules, maybe even getting suspended once in high school for the “normal” prank or fight in the gym.  He’ll graduate from the “normal” or even AP classes and go to a “normal” university or college or trade school.  If I’m lucky, MY kid might work at Target bagging groceries and won’t get put in handcuffs by the cops when she’s fighting to run away from them after they’re called because she is screaming that the music is too loud.

But you know what?  “Normal is just a setting on the dryer!” (That’s another of Cindy’s catch phrases that she uses on me almost weekly, as she talks me off another emotional ledge.)  And the need for organizations like Autism Speaks, is to help the “normal” people, like you;  To assist you in understanding that not everyone is physically ABLE to understand your social cues and common courtesies that, when you think about it logically, really make very little sense at all.  Since when does “Excuse me,” translate to the rest of the world as “Step aside quickly. I want to push past you?” It is actually just a catch-all phrase that is  “said politely in various contexts, for example when attempting to get someone’s attention, asking someone to move so that one may pass, or interrupting or disagreeing with a speaker; or said when asking someone to repeat what they have just said.”  (**according to Bing’s definition.)

So when we are paying for our cup of hot chocolate at the 7-11 and take that entire extra 2.6 seconds to place 25 cents change inside a purse and zip it closed before attempting to leave the store, the words, “Excuse me,” have little meaning to my Autistic daughter.  The old hag who shoved past her while saying them meant, “I’m an impatient old bat in dire need of lottery tickets and another pack of cigarettes. Now move your ass!”

So, now that she has been pushed and hurried, she is holding her hot chocolate in one hand and my hand with the other.  As we attempt to exit the store, a young man grabbed the door handle and swung it open widely.  But instead of waiting for us to step through it, he pushed into me as he tried to squeeze past, causing me to bump into my daughter, which caused her to spill hot chocolate onto her hand. THEN he had the nerve to be upset when she screamed from the burn on her hand and turned around and shouted, “YOU FUCK!” at him. He started to argue but I said, “She has Autism….she doesn’t mean,” and then I stopped myself. You know what, old hag at the counter and boy who can’t wait for 1 second to enter a store before the doorway is cleared?  She’s right. You ARE fucks.

Autism awareness organizations are around because YOU “normal” people are too ignorant to recognize disabilities that are not glaring in your faces.  How many “normal” people walk around 7-11 wearing gun range headphones to cut down the noise around them?! OBVIOUSLY, there’s an issue there and this person doesn’t fall into your definition of “normal.”  Do you ordinarily push past the guy with the white cane because he’s taking an extra second to get through the door he can’t see?  What about the people who are speaking in sign language to one another?  Do you get pissy and shove past them when they don’t hear your lame “excuse me” at the check out lane?

Patience is something that everyone could use.  Do I sound impatient?  Well, I am. But this is due to YEARS of having complete strangers walk up and “shush” my kid who is screaming because the lights are too bright and some assistant manager decided to crank up the music playing on the PA system at the grocery store.  I will maintain my usual demeanor, most days, in public but I will no longer apologize to people for my daughter’s outbursts when 9 times out of 10 they contribute to them.  Just because she cannot verbalize what is bothering her does not mean that she is out of line for feeling bothered.  Attempting to understand why someone is upset is a sign of maturity.

I’m not expecting the world to bend over backwards and allow the AU crowd to do whatever they want whenever they want.  All I’m asking is that you take a second before reacting to their Tourette’s-like responses and decide whether that person is in crisis. Sometimes it’s truly just a disability.

Milestones

Tomorrow afternoon will mark a big fat milestone in our lives. Two more of our five kids will be crossing that stage at their high school graduation. This isn’t the first time we’ve done this. So why am I so overwhelmed with the feels of it all?

Randa is 20. She’s our “special needs” kid and while eligible to stay at the school for one more year before she ages out of their Alternate Curriculum program, she is bored. She wants to graduate NOW. They told us going in that there was going to come a time when she is going to advance past what they are able to teach her. That time has come. Many would argue that she could mainstream into the general education population. That is just not a possibility with her issues. So we’re going to do more Mommy-Randa stuff starting next Fall. We’re going to visit museums and family members around the Metroplex and take some classes at the fabric store and learn to sew and join a water aerobics class. Randa is excited to start the next chapter after Sam Houston High.

Ismail is 18. He, like his older brother before him, seems to be struggling with the excitement of graduating versus the sadness and anxiety of leaving behind all he knows. I am guessing that boys are like this. (I wouldn’t know, having never been a boy.) He is suffering today as he paces around and asks questions to which he already knows the answers. He’s spent a lot of time on the front porch. Being outside calms his nerves. He is still not certain what he’s going to do. He wants to become an electrician and be a man and not have to answer to his parents and buy a car and get a job, and all of the swirling plans that all boys his age have.

But Ismail is still so tender-hearted in so many ways. And his family is all he’s ever known. No matter where we lived on the globe spanning three countries and several states, we’ve always had each other. The idea of moving away to another part of the state to go to school without his safety net is so intriguing and exciting and altogether scary. So he’s put off making firm plans as of yet. He wants to take a little time off and work. And that’s okay. Ismail has always been one who needs to chew on his idea before he spits out his final answer.

And tomorrow as I stand on that stage, holding Randa’s hand to help her to battle back the anxiety as she walks across toward the end of her high school tunnel, I’ll be watching Ismail, one place ahead of her in the alphabet, reaching his. I’m so proud to be their mother.

I Did It Again!

Everyone has been guilty of it. At least, I hope I’m not alone in this. But I have this tendency to put important things in a “really safe place” and then when it comes time that I really need them, said “really safe place” has completely left my mind. Last time it was a social security card. Only took 5 days, but I found it. The application for health coverage took a little longer to find. Well, a lot longer. Like…6  months longer. But in my defense, someone rearranged all the paperwork in my stacked filing system. For crying out loud, would you people just STOP touching my desk!? But this one is a doozy.

I placed the tassels for Randa and Ismail’s graduation caps in a drawer so that no one would lose them. And I don’t remember which drawer. I’ve searched them all. And poof. They’re gone. And while I have until Sunday to find them, I really don’t. Because Randa has an awards ceremony for the seniors in the Special Education department and she is supposed to wear her cap and gown tomorrow. *sigh*

One of these days I’m going to find a “very special place” that is just a blatant out in the open place with a lock on it to keep nosy people and meddling hands away. Of course, you know what that means, right? I’ll just lose the damn key.

In Memoriam

The doctor is not in. He is no longer accepting new patients. He is gone. There will be no referrals. You’re on your own. It’s just as well. No one could fill his shoes anyway. His title was honorary. He wasn’t really a doctor. He was a pipe-fitter, master mechanic, automotive hobbyist. He was known as Dad, Uncle Tracy, Mr. Tracy, and Honey. (His grandkids call him Honey.) To me, he will always be Dr. Tracy – the brain surgeon who earned his title teaching his teenage daughter how to drive a 3-on-the-tree manual transmission pick up truck as I sat between them. “If this truck is in first gear, then I’m a brain surgeon!”

When Dr. Tracy called me back in January to let me know that he was terminal, I was at the high school doing volunteer work. He seemed matter of fact and could just as easily have been telling me that he’d sprained an ankle.  Being the walking Kleenex commercial that I am, I sat down and started to cry.  He got upset that he’d upset me. I guess that’s always the way with any terminal disease, isn’t it? The person who is doing the dying always spends his last days consoling those who aren’t.  He said, “Now see? I shouldn’t have told you. I knew you were at the school, and I’ve gone and upset you. I didn’t call to make you cry or beg sympathy.” Well, then the tears were replaced by anger. (Yeah, I’m an emotional funnel cloud some days.)

“Look here, Old Man!” I told him (without shouting because he is still my elder.) “I love you almost as much as I love my own daddy. So, you’ll allow me the privilege of crying for you.” Aside from my dad, husband, and brother, there is no other man I’ve loved more.

It took a few weeks to arrange things here in Texas before I could get down to see him. While my five children are mostly grown, there are still 4 in high school, one of whom is “special needs.”  My siblings took turns heading from here to Mobile to visit with him. And then it was my turn. And I think for each of us it was similar. We arrived at the house and had something to eat at the kitchen table with him. Then we held down that kitchen chair talking to him, laughing with him, reminiscing with him until it was time for us to head back to Texas. Our cousins from Alabama, Mississippi, and even New York, traveled down to Mobile to sit on that chair and love on him these past few months.

Aunt Ginger and Wendy have both told me how “tickled he was” that we took the time to come visit with him. And I think that I speak for all of us when I say that we wished we could have done more. You see, Uncle Tracy was not our “blood relative.” He married our Aunt Ginger more than 54 years ago and he seemed to think that he was an “in-law” to all of us. He seemed genuinely surprised by the number of his nieces, nephews, and grandnieces and grandnephews whose lives had been touched by him. Most of us had known him as long as we’d been alive and had gotten advice from him about various mechanical issues, or home repair issues, or just chewing the fat. He’s family. However it was that he joined it, by birth or by marital bond: He’d been part of it longer than any of us.

Our family is short by one tall member today. And while we mourn our loss of him, we rejoice that he is no longer suffering the pain that he endured for these last months. The good doctor will always be with us in spirit and in memory. And every time I start to drive after accidentally putting my car in third gear rather than first, I know that there is a brain surgeon smiling down from Heaven at me.

Prom Season is Upon Us

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I’m not going to lie to you. We NEED money. Hosting a prom each year is expensive. But STARRY NIGHT PROM is doing everything in its power to continue keeping this event cost-free for the Arlington ISD high school students with significant disabilities and their chaperone. It truly isn’t easy. But here’s how you can help.

Donate: If you could just provide us with as much as you are comfortable with donating, it could make all the difference in the world. Each and every donation, regardless of amount, is greatly appreciated. To reach our secure fundraising site, please click on this link———————————> RIGHT HERE!

Share:  Please share this post. Circulating this blog post among your friends via your social media outlets can assist us in reaching even more potential donors. This can make all the difference in the world. Please click on the Facebook, Twitter, or email links below to help our cause.

In-Kind Donations:  If you own a business or represent an organization that would like to sponsor STARRY NIGHT PROM by in-kind donations of logo-bearing promotional items (such as pens, pennants, t-shirts, hats, refrigerator magnets, keychains, lanyards, drink koozies, etc,) please email me here———————> starrynightprom@outlook.com.

We are also accepting gift basket items to be raffled off during the event, 29 April 2017. If you have a gift basket that you would like to donate for raffle, please contact me at the email address above.

ALL DONATIONS ARE TAX-DEDUCTIBLE. STARRY NIGHT PROM IS A REGISTERED 501 (C)(3) NON-PROFIT ORGANIZATION.

STARRY NIGHT PROM 2017

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This kid right here? He’s having a blast, dancing his heart out at the Starry Night Prom last year.

2017 will mark our TENTH ANNUAL STARRY NIGHT PROM! Can you believe we’ve been doing this for an entire decade? We decided to celebrate that fact by throwing an even better prom this year than we did last year. But in order to do that, we need your help. This prom is run entirely on donations. Yes, that’s right. The invitations, corsages and boutonnieres, decorations, food, DJ, desserts, photography, commemorative t-shirts, swag bags and everything in them: ALL donated or paid for with your donations. Even the people who provide service on this night- all volunteers.

And throwing an event like STARRY NIGHT PROM each year is not cheap. So we’re calling on you to help us out. Please donate to help us reach our $6000 goal and make this magical night a reality for these kids within the Arlington ISD. Just click on the highlighted link below and you’ll be directed to our crowd-sourcing fundraiser site.

CLICK HERE TO DONATE TO STARRY NIGHT PROM 2017!

If you own a business and would like to donate logo-bearing in-kind donation for swag bags, please contact our Vice-President of Donations by emailing her here: starrynightprom@outlook.com

If you have other in-kind donations that you’d like to donate, such as gently used prom dresses or tuxedoes, or if you’d like to purchase and donate food items or gift cards to local grocery or department stores, swagbag items, etc., also please contact our Vice-President of Donations via email: starrynightprom@outlook.com.

Remember EVERY donation is appreciated and we will provide  you with a tax-deductible receipt.

**STARRY NIGHT PROM is a registered 501(c)(3) Non-Profit Organization.

6 Days Left

Starry Night Prom 2015 SWAG BAGS

These are STARRY NIGHT PROM goodie bags from our 2015 prom. These customized backpacks were donated to us by the Elks Lodge #2114 in Arlington, Texas. We stuffed them full of swag for each of our attendees; AISD High School students with significant disabilities. The swag included a customized Starry Night Prom 20-ounce cup, pens, pencils, keychains, compact mirrors, coupons and gift certificates from many local businesses, toys, stickers, magnets, and other cool items. Each backpack also contained a STARRY NIGHT PROM commemorative t-shirt with all of our big sponsors printed on the back.

So all of that stuff inside the goodie bags? FREE for our students who attend. You know what else is free? The meal for each of them (and for one attending chaperone guest per student,) the prom portrait photography, the prom fun photo booth style photography, the boutonnieres and corsages, the beautiful custom made invitations, the dessert fountain, the DJ and big dance floor where they can dance and have a wonderful time. All of this is paid for by the donations of kind and generous people who want to see these kids have a magical Starry Night Prom.

And even though a lot of the swag, backpacks, venue, services including cooking and catering are donated as in-kind donations, we still need money to pay for the photography, DJ, printing of invitations, shirts, cups, decorations, additional swag, and a large portion of the food items that are purchased each year.

Our ongoing FACEBOOK fundraiser event is still active for 5 more days! Facebook has waived all of their usual fees for registered  501 (C) (3) nonprofit organizations with Facebook pages during the #GivingTuesday fundraiser drive. This means that 100% of all donations made via the Starry Night Prom Facebook page will be donated to our noble cause.

Won’t you please consider donating to Starry Night Prom and give these kids their magical night this Spring 2017? All donations are 100% appreciated. Thank you for your support.