A Starry Night Setback

I was saddened just now to read on our Starry Night Prom fundraiser page the following message from #GivingTuesday:

” #GivingTuesday Match Report

On Nov 28, we raised $45 million for causes around the world. Unfortunately, your fundraiser didn’t receive a match this year, but from all of us at Facebook, thank you for being part of our fundraising community.”
We were really hoping that the matching would kick start our fundraising efforts to alleviate the usual last minute scramble that we do each year.  But that didn’t happen.
The good news is, I am an optimist.  This is part of the uniform we Vice-Presidents of Donations wear.  And so, I will polish my Donations Star, put it back on my chest, and continue to raise money for this truly amazing cause for an even more amazing group of kids.  Our silver lining is that we have raised $869, so far, toward the 2018 Starry Night Prom.  And that is $869 that we did not have on Cyber Monday.
That said, good donors and potential donors, we still have until December 5, 2017 to raise more money for this fundraiser.  Please give.  We truly appreciate your support.  Please share these posts, even if you have already donated or are not in a position to do so at this time.  Perhaps someone on your friends list will be able.  Thank you.

To the Strangers Who Stare and Comment: Get Bent.

I am the parent of a young adult with Autism.  I’m patient. She’s helped me build that patience. But if you are a parent of a young child with Autism and you leave me a comment giving me advice that basically would reinvent my wheel, so help me God, I will reply and make you cry.

I have been dealing with the explosive outbursts, Autistic meltdowns, sensory overload, overstimulation on low pressure days, tactile issues, noise issues, overpowering scents, obnoxious gestures and flight or fight reactions for well over 20 years. I got this. I’m not perfect. But I get HER. And as my friend, Cindy, says all the time, “When you know one person with Autism, you know ONE person with Autism.” Cindy would know. She’s been a teacher for about 13 years, 8 of those with Special Education.  She’s so right. If you intellectually know that every person WITHOUT Autism is a unique individual, then WHY can’t you get that about people WITH Autism?!

Do I seem shout-y and intolerant? I am. I am tired of the looks and the stares and the rude remarks and the presumptuous (albeit well-intended), unhelpful advice from people with ZERO experience with MY kid.

I am one of those parents who, until today, thought that Autism Speaks and other Autism awareness organizations do little to help those of us in the trenches of this nonverbal disability each day. I do not have a puzzle piece bumper sticker or a blue light bulb for the once a year “Blue Out” that some of my other friends put on their porch light. I didn’t “GET IT” until this morning.

While these organizations are working on research to help us understand causes and work on better interventions for Autism, they aren’t really a helpful “go to” resource for parents of older people with Autism who are still hoeing that row for those that follow us.  I’m not at all suggesting that my 21 year old daughter is a pioneer for the AU crowd around here. But I’m telling you that the reactions that she has are less accepted of her than they are for someone with similar disabilities who is 5 years old. And most of us with older kids/young adults are figuring it out as we go along…JUST LIKE ALL OF YOU WITH THE ALLEGEDLY NORMAL KIDS.

Here is the thing, “Normal Parent:”  YOUR kid will one day actually listen to your advice. He will get to do all the “normal” developmental stuff and “normal” school and break the “normal” rules, maybe even getting suspended once in high school for the “normal” prank or fight in the gym.  He’ll graduate from the “normal” or even AP classes and go to a “normal” university or college or trade school.  If I’m lucky, MY kid might work at Target bagging groceries and won’t get put in handcuffs by the cops when she’s fighting to run away from them after they’re called because she is screaming that the music is too loud.

But you know what?  “Normal is just a setting on the dryer!” (That’s another of Cindy’s catch phrases that she uses on me almost weekly, as she talks me off another emotional ledge.)  And the need for organizations like Autism Speaks, is to help the “normal” people, like you;  To assist you in understanding that not everyone is physically ABLE to understand your social cues and common courtesies that, when you think about it logically, really make very little sense at all.  Since when does “Excuse me,” translate to the rest of the world as “Step aside quickly. I want to push past you?” It is actually just a catch-all phrase that is  “said politely in various contexts, for example when attempting to get someone’s attention, asking someone to move so that one may pass, or interrupting or disagreeing with a speaker; or said when asking someone to repeat what they have just said.”  (**according to Bing’s definition.)

So when we are paying for our cup of hot chocolate at the 7-11 and take that entire extra 2.6 seconds to place 25 cents change inside a purse and zip it closed before attempting to leave the store, the words, “Excuse me,” have little meaning to my Autistic daughter.  The old hag who shoved past her while saying them meant, “I’m an impatient old bat in dire need of lottery tickets and another pack of cigarettes. Now move your ass!”

So, now that she has been pushed and hurried, she is holding her hot chocolate in one hand and my hand with the other.  As we attempt to exit the store, a young man grabbed the door handle and swung it open widely.  But instead of waiting for us to step through it, he pushed into me as he tried to squeeze past, causing me to bump into my daughter, which caused her to spill hot chocolate onto her hand. THEN he had the nerve to be upset when she screamed from the burn on her hand and turned around and shouted, “YOU FUCK!” at him. He started to argue but I said, “She has Autism….she doesn’t mean,” and then I stopped myself. You know what, old hag at the counter and boy who can’t wait for 1 second to enter a store before the doorway is cleared?  She’s right. You ARE fucks.

Autism awareness organizations are around because YOU “normal” people are too ignorant to recognize disabilities that are not glaring in your faces.  How many “normal” people walk around 7-11 wearing gun range headphones to cut down the noise around them?! OBVIOUSLY, there’s an issue there and this person doesn’t fall into your definition of “normal.”  Do you ordinarily push past the guy with the white cane because he’s taking an extra second to get through the door he can’t see?  What about the people who are speaking in sign language to one another?  Do you get pissy and shove past them when they don’t hear your lame “excuse me” at the check out lane?

Patience is something that everyone could use.  Do I sound impatient?  Well, I am. But this is due to YEARS of having complete strangers walk up and “shush” my kid who is screaming because the lights are too bright and some assistant manager decided to crank up the music playing on the PA system at the grocery store.  I will maintain my usual demeanor, most days, in public but I will no longer apologize to people for my daughter’s outbursts when 9 times out of 10 they contribute to them.  Just because she cannot verbalize what is bothering her does not mean that she is out of line for feeling bothered.  Attempting to understand why someone is upset is a sign of maturity.

I’m not expecting the world to bend over backwards and allow the AU crowd to do whatever they want whenever they want.  All I’m asking is that you take a second before reacting to their Tourette’s-like responses and decide whether that person is in crisis. Sometimes it’s truly just a disability.

Prom Season is Upon Us

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I’m not going to lie to you. We NEED money. Hosting a prom each year is expensive. But STARRY NIGHT PROM is doing everything in its power to continue keeping this event cost-free for the Arlington ISD high school students with significant disabilities and their chaperone. It truly isn’t easy. But here’s how you can help.

Donate: If you could just provide us with as much as you are comfortable with donating, it could make all the difference in the world. Each and every donation, regardless of amount, is greatly appreciated. To reach our secure fundraising site, please click on this link———————————> RIGHT HERE!

Share:  Please share this post. Circulating this blog post among your friends via your social media outlets can assist us in reaching even more potential donors. This can make all the difference in the world. Please click on the Facebook, Twitter, or email links below to help our cause.

In-Kind Donations:  If you own a business or represent an organization that would like to sponsor STARRY NIGHT PROM by in-kind donations of logo-bearing promotional items (such as pens, pennants, t-shirts, hats, refrigerator magnets, keychains, lanyards, drink koozies, etc,) please email me here———————> starrynightprom@outlook.com.

We are also accepting gift basket items to be raffled off during the event, 29 April 2017. If you have a gift basket that you would like to donate for raffle, please contact me at the email address above.

ALL DONATIONS ARE TAX-DEDUCTIBLE. STARRY NIGHT PROM IS A REGISTERED 501 (C)(3) NON-PROFIT ORGANIZATION.

6 Days Left

Starry Night Prom 2015 SWAG BAGS

These are STARRY NIGHT PROM goodie bags from our 2015 prom. These customized backpacks were donated to us by the Elks Lodge #2114 in Arlington, Texas. We stuffed them full of swag for each of our attendees; AISD High School students with significant disabilities. The swag included a customized Starry Night Prom 20-ounce cup, pens, pencils, keychains, compact mirrors, coupons and gift certificates from many local businesses, toys, stickers, magnets, and other cool items. Each backpack also contained a STARRY NIGHT PROM commemorative t-shirt with all of our big sponsors printed on the back.

So all of that stuff inside the goodie bags? FREE for our students who attend. You know what else is free? The meal for each of them (and for one attending chaperone guest per student,) the prom portrait photography, the prom fun photo booth style photography, the boutonnieres and corsages, the beautiful custom made invitations, the dessert fountain, the DJ and big dance floor where they can dance and have a wonderful time. All of this is paid for by the donations of kind and generous people who want to see these kids have a magical Starry Night Prom.

And even though a lot of the swag, backpacks, venue, services including cooking and catering are donated as in-kind donations, we still need money to pay for the photography, DJ, printing of invitations, shirts, cups, decorations, additional swag, and a large portion of the food items that are purchased each year.

Our ongoing FACEBOOK fundraiser event is still active for 5 more days! Facebook has waived all of their usual fees for registered  501 (C) (3) nonprofit organizations with Facebook pages during the #GivingTuesday fundraiser drive. This means that 100% of all donations made via the Starry Night Prom Facebook page will be donated to our noble cause.

Won’t you please consider donating to Starry Night Prom and give these kids their magical night this Spring 2017? All donations are 100% appreciated. Thank you for your support.

 

 

It’s NOT a Tantrum

Walking through a supermarket, the severely Autistic person wears gun-range headphones to help block excess noise to protect her highly sensitive hearing from the overwhelming barrage of clanking, banging, muzak, baby cries, squeaky buggy wheels and blips and bloops from cash registers. A woman getting over a cold coughs into her elbow, and the Autistic person’s face grows dark. Her mother notices the scowl and the wincing on her non-verbal daughter’s face. She puts the Cheerios back on the shelf and grabs her daughter’s hands and softly speaks into her face, “Poor lady. She’s sick. Sick people cannot help coughing, honey. It’s okay.”

The mom gently guides her daughter from the cereal aisle and the cussing begins followed by screaming and crying. “Ears hurt! STUPID WOMAN!” People begin to stare. Some people whisper and make angry faces. The screaming continues while the mom gives deep pressure hugs and wipes away tears, speaking gently about good choices and soft voices.

An angry woman walks by with her nearly full buggy with the squeaky wheel and stops to SHUSH! the girl. The mother spins around on her heel and tells the woman she is out of line. “You should shut her up! It’s incredibly rude to the other shoppers for her to be throwing a tantrum in the middle of the supermarket! What is she? Retarded?”

“First, she’s got Autism and she is in distress, NOT that we owe you an explanation. A tantrum is a fit thrown in order to get what one wants. This is an Autistic Meltdown which is brought on by environmental situations. What makes them continue is rude judgmental people like you! Secondly, this is Kroger. If you want quiet, go to the fucking library!” The mother turns her back on the sputtering woman, who has now become just another bit of background noise. The girl continues to cry and loudly repeat the same line from her favorite movie, as though stuck on a loop.

The store manager walks up and smiles. He knows the woman and the daughter, as they are regular shoppers here. He asks if everything is all right. The woman nods that it is. The girl notices the manager’s very large mustache and points at his face. “It’s big whiskers!” she says, wiping away her tears. The man laughs and agrees that they are. The girl smiles and says, “Bye. Come on, Mommy. It’s Cheerios.” The mom grabs the hand of her 20-year old girl and mouths a quick thank you over her shoulder to the manager. She returns to the cereal aisle and adds the Cheerios to the buggy while the girl happily pushes beside her.

 

Judging Books by Covers

The following was written by my friend, Joli Crow. (It’s shared with her permission.) And it speaks volumes as to the body-shaming and judging and the ridiculous lack of manners that seems to be rampant any more. I read this this morning on her Facebook status and the more I read, the more my heart broke for her. I honestly don’t know what I would have done were I to have been in her place. I would like to say that I’d have called him out on it out loud. I’ve done this in defending my daughter during her autistic meltdowns and people are staring or making rude remarks. But I don’t know that I would if I were the target of mean comments and bug-eyed glares.

Joli, you are an amazing woman; a survivor. Keep strong. ~N

****

Dear Mr. Chiseled Jaw,

I heard you this morning. Standing behind me, on your phone. I heard you tell the person on the other end that you can’t stand fat people. I heard you tell them you thought something was wrong with me, because you can see the scars on my arms and chest. I heard you tell them that “a little hard work and some plastic surgery and she MIGHT be a 5 someday.” And the comments about my hair. And the laughing.

A few years, a few months, hell, even a few weeks ago, I would have broken and faltered under your harsh words and judging gaze. I would have gone home, curled up under my blanket, and cried myself to sleep. I would have started comfort eating, or hide myself in a book, or done ANYTHING I could to pretend I never heard you.

But I’m going to tell you something. Are you listening? Probably not, but I’ll tell you anyway. This “fat” body? Carried life inside it. It protected a tiny human, one who now could pick your ass up and toss you aside without a second thought.
This “fat” body? You act like it is unlovable. Yet not only do I have an amazing partner who loves it and all its curves, but I have two children who love to cuddle it; who think my softness is a source of comfort. It’s a body people are not afraid to touch, to hug. It’s a body that has lived.
My scars? The ones you said made me look like a junkie or an AIDS victim? I never chose them. They chose me. Each scar was carefully applied with hate, malice, and savagery. Each BATTLE SCAR is a reminder of each day I have survived; each war I have won. Each scar is a reminder of the victories, both large and small, that I have earned in my life.
I may not be YOUR perfect 10. But I know my worth. I know who I am. I know and love each of my demons. I have survived and I have won!

Today, you could have hurt me. You could have undone all the hard work I have put myself through to love myself more. But you’re not worth it. You are no one to me and I don’t have to answer to you or your opinions of me. Because at the end of the day, are you the one putting food on my table, clothing my children, paying my bills, loving me and each of my scars and every pound of me? Are you the one jumping to my side when I need a friend? Are you the one I turn to for comfort?

NO.

So, have a nice day. Enjoy your life and learn to be a little less of an asshole.

K? Thanks, bye!

From,

The Woman who no longer gives a damn what you think.

PS. I will admit a certain satisfaction when you were refused service because of your statements. Gotta love small towns!

Kroger Plus Card Swipes for Starry Night Prom

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Are you one of those people who truly LOVES inspirational stories and programs and organizations that want to help all of the people with all of the things but you just don’t want to buy anymore cookie dough or wrapping paper or write anymore checks?! Yeah. I’m one of those, too.
So how can you help support STARRY NIGHT PROM and stay true to your Introverted tendencies? It’s easy. Go grocery shopping.

WHAT?!?

Yes. You read that right. GO GROCERY SHOPPING. But not just anywhere. Go to KROGER.

Here are the exact directions as outlined in the email we received from Kroger:

Kroger Community Rewards – Customer Instructions

A Digital Account is needed in order to participate in Kroger Community Rewards. If you already have a Digital Account, then please skip to the section named ‘Selecting an Organization’.
 
How to Register a Digital Account
Creating a digital account is as simple as 1,2,3! Simply visit www.kroger.com or download the Kroger mobile application from the appropriate app store for your device and follow these directions.
1.      Select the ‘Register’ button.
2.      Enter your information.
3.      Select ‘Create Account’.
Please make sure that you add your card number or create a virtual card number while registering your Digital Account. This is required for the Community Rewards program so that your transactions apply towards the program.
 
Selecting an Organization
Selecting the organization that you wish to support is as simple updating the Community Rewards selection on your Digital Account.
·        Sign into your Digital Account (if you haven’t already).
·        Select ‘My Account’.
·        Scroll down to the ‘Community Rewards’ section of your account page.
·        Select ‘Enroll Now’ or ‘Edit’.
·        Enter the name or NPO number of the organization that you wish to support.
***STARRY NIGHT PROM’S NPO number is 75547****
·        Select the appropriate organization from the list and click on ‘Save’.
Your selected organization will now display in the Community Rewards section of your account page.
Any transactions moving forward using the card number associated with your digital account will be applied to the program.
It takes approximately 10 days for the Community Rewards total to begin displaying on your receipt.
 
Again, Starry Night Prom’s NPO number is 75547.

Please help support Starry Night Prom and select STARRY NIGHT PROM (NPO number 75547) from the Community Rewards section at Kroger.com today. Thank you.

**Only valid in Kroger stores in Texas and Louisiana.
***Photograph credit: Amber Inman Photography. Property of Starry Night Prom, Inc, Used with Permission

Gearing Up for Starry Night Prom 2017

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See these bright smiles and happy faces in this photograph? They belong to some of the participants in the Starry Night Prom 2016. Starry Night Prom is a registered Non-Profit 501 (C) (3) organization that annually holds an all expense paid prom for Arlington ISD High School students with significant disabilities. Starry Night Prom is heading into its tenth year of hosting proms for these amazing kids and we want Starry Night Prom 2017 to be better than ever.

Throwing a prom at no cost for the students and their required chaperone requires donations, both money and in-kind. So the Starry Night Prom Vice-President of Donations has decided to start early this year. And our first fundraising event is already set up! With the help of the amazing, tasteful, and trendy: Charming Charlie (located in the Arlington Highlands.)

Charming Charlie is already having an awesome sale this entire Labor Day weekend. Why not do your shopping the first night of their sale to take advantage of their discount prices, fabulous selection, AND help a worthy cause? Think of the great Christmas gifts you can score ahead of the crowds! And don’t you think it’s time you got a new purse for yourself? Charming Charlie has bling, accessories, clothes, shoes, handbags, scarves and more.

How does your shopping help Starry Night Prom? It’s easy. If you show up this Friday, September 2, 2016 between 5:30 p.m. and 9:00 p.m. and shop, then you mention, “I want to support Starry Night Prom,” to the associate at check out. The associate will key in our special Starry Night Prom Chic Charity Event code into the register and then Charming Charlie will donate 10% of your total purchase price to Starry Night Prom. That’s it.

So, when and where and how is this again?

WHEN:          Friday, September 2, 2016
TIME:             From 5:30 p.m. until 9:00 p.m.
WHERE:        Charming Charlie located at 3901 Arlington Highlands Blvd,

                         Suite 101

                        Arlington, TX 76018

HOW:            Just go to Charming Charlie at the address above. Buy from their entire selection of amazing products and mention STARRY NIGHT PROM to the associate at check out. PLEASE be sure to mention STARRY NIGHT PROM at the beginning of your check out process to ensure that they code the transaction properly so that STARRY NIGHT PROM will receive a donation in the amount of 10% of your total sale.

We at Starry Night Prom thank you in advance for coming out to support our worthy cause. Helping to give an Arlington ISD high school student with significant disabilities the opportunity to enjoy the Prom experience that they might not have been able to have is definitely a reason to smile. Don’t believe it? The proof is in those smiles in the photo above.

 

 

 

 

 

Our Summer Vacation to Athens

So, this week has been a major ass-kicker for me…mostly in a good way. Sunday we took advantage of the fact that my son and daughter both quit their summer jobs and that my husband finally replaced the compressor in the van giving us air-conditioning. YAY. So we finally got on the road about 2 pm and headed off to Athens. (That’s Athens, Texas, y’all.)
Of course, due to the late start and having to deal with a major autistic meltdown with a pit stop at Dairy Queen to calm nerves all around, we managed to get to this po-dunk town after everything that we wanted to see had closed. So we headed back to the main drag and pulled into the East Texas Arboretum and did a little hiking in 104 degree heat. It was an impressive patch of woods with lots of lovely gardens and fountains and a one-room school house and a bat house. We spent a whopping hour there before piling back into the van and driving home. I think the highlights for me were the photos of my kids and husband playing “slow-mo Ninja” in the gazebo and the fact that I didn’t have to cook. (We bought pizza that night.) My husband was excited about the fact that I had enough fuel points to only have to pay 86 cents per gallon when we filled up the van.

We’ve traveled quite a bit all over the US, Europe, Middle East and North Africa. But since moving to the US and making our home in Texas, we’ve decided to spend some time seeing all of the major European cities within Texas state lines. We have now gone to Paris, Dublin, and Athens. Not bad for day trips, huh?

Fam in Athens