A Starry Night Setback

I was saddened just now to read on our Starry Night Prom fundraiser page the following message from #GivingTuesday:

” #GivingTuesday Match Report

On Nov 28, we raised $45 million for causes around the world. Unfortunately, your fundraiser didn’t receive a match this year, but from all of us at Facebook, thank you for being part of our fundraising community.”
We were really hoping that the matching would kick start our fundraising efforts to alleviate the usual last minute scramble that we do each year.  But that didn’t happen.
The good news is, I am an optimist.  This is part of the uniform we Vice-Presidents of Donations wear.  And so, I will polish my Donations Star, put it back on my chest, and continue to raise money for this truly amazing cause for an even more amazing group of kids.  Our silver lining is that we have raised $869, so far, toward the 2018 Starry Night Prom.  And that is $869 that we did not have on Cyber Monday.
That said, good donors and potential donors, we still have until December 5, 2017 to raise more money for this fundraiser.  Please give.  We truly appreciate your support.  Please share these posts, even if you have already donated or are not in a position to do so at this time.  Perhaps someone on your friends list will be able.  Thank you.

Set Your Alarms for 8 O’Clock Tuesday Morning, Y’all

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We are so excited! Tomorrow is #GivingTuesday.  We are so stoked to be participating in the fundraising again this year.  You know what is so cool about giving on the 28th of November, though?  Facebook AND the Bill and Melinda Gates Foundation will be matching all nonprofits donations after 8 a.m. on Tuesday, 28 November 2017, up to $50,000 until 11:59 p.m.!  Yes, that’s right.  That means that if you donate $20 to us tomorrow, Starry Night Prom will receive $60.  Isn’t that the coolest?!

So, please, anytime after 8 a.m. EST tomorrow, please click on THIS SECURE FUNDRAISER LINK and donate whatever you feel comfortable giving to help our cause, and those funds will be matched.  We appreciate your help.  Your generous donations are how we are able to provide an all expenses paid prom for the Arlington ISD high school students with significant disabilities each year.

Starry Night Prom is a registered 501 (c)(3) Non-Profit Organization.

Starry Night Prom 2018 Fundraiser Kickoff!

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Starry Night Prom is about to kick off its 2018 Fundraising efforts by participating in the #GivingTuesday fundraiser.  We have updated our own fundraiser on the YouCaring website and we’ve set up our #GivingTuesday fundraiser on Facebook. And guess what!  Once again, Facebook is waiving their usual fees for all donations made from 12:00am EST on November 28, 2017 to 11:59pm HST on November 28, 2017.  Isn’t that awesome?  But wait!  That’s not all!

On #GivingTuesday, Facebook and the Bill & Melinda Gates Foundation will be matching up to $2 million of funds raised on Facebook for US nonprofits.  For more information about the matching, please click RIGHT HERE TO THE GivingTuesday Information on Facebook.   

Please donate to this magical cause and level the social playing field for some of Arlington’s most amazing students.  Support the Starry Night Prom! Thank you.

 

 

 

To the Strangers Who Stare and Comment: Get Bent.

I am the parent of a young adult with Autism.  I’m patient. She’s helped me build that patience. But if you are a parent of a young child with Autism and you leave me a comment giving me advice that basically would reinvent my wheel, so help me God, I will reply and make you cry.

I have been dealing with the explosive outbursts, Autistic meltdowns, sensory overload, overstimulation on low pressure days, tactile issues, noise issues, overpowering scents, obnoxious gestures and flight or fight reactions for well over 20 years. I got this. I’m not perfect. But I get HER. And as my friend, Cindy, says all the time, “When you know one person with Autism, you know ONE person with Autism.” Cindy would know. She’s been a teacher for about 13 years, 8 of those with Special Education.  She’s so right. If you intellectually know that every person WITHOUT Autism is a unique individual, then WHY can’t you get that about people WITH Autism?!

Do I seem shout-y and intolerant? I am. I am tired of the looks and the stares and the rude remarks and the presumptuous (albeit well-intended), unhelpful advice from people with ZERO experience with MY kid.

I am one of those parents who, until today, thought that Autism Speaks and other Autism awareness organizations do little to help those of us in the trenches of this nonverbal disability each day. I do not have a puzzle piece bumper sticker or a blue light bulb for the once a year “Blue Out” that some of my other friends put on their porch light. I didn’t “GET IT” until this morning.

While these organizations are working on research to help us understand causes and work on better interventions for Autism, they aren’t really a helpful “go to” resource for parents of older people with Autism who are still hoeing that row for those that follow us.  I’m not at all suggesting that my 21 year old daughter is a pioneer for the AU crowd around here. But I’m telling you that the reactions that she has are less accepted of her than they are for someone with similar disabilities who is 5 years old. And most of us with older kids/young adults are figuring it out as we go along…JUST LIKE ALL OF YOU WITH THE ALLEGEDLY NORMAL KIDS.

Here is the thing, “Normal Parent:”  YOUR kid will one day actually listen to your advice. He will get to do all the “normal” developmental stuff and “normal” school and break the “normal” rules, maybe even getting suspended once in high school for the “normal” prank or fight in the gym.  He’ll graduate from the “normal” or even AP classes and go to a “normal” university or college or trade school.  If I’m lucky, MY kid might work at Target bagging groceries and won’t get put in handcuffs by the cops when she’s fighting to run away from them after they’re called because she is screaming that the music is too loud.

But you know what?  “Normal is just a setting on the dryer!” (That’s another of Cindy’s catch phrases that she uses on me almost weekly, as she talks me off another emotional ledge.)  And the need for organizations like Autism Speaks, is to help the “normal” people, like you;  To assist you in understanding that not everyone is physically ABLE to understand your social cues and common courtesies that, when you think about it logically, really make very little sense at all.  Since when does “Excuse me,” translate to the rest of the world as “Step aside quickly. I want to push past you?” It is actually just a catch-all phrase that is  “said politely in various contexts, for example when attempting to get someone’s attention, asking someone to move so that one may pass, or interrupting or disagreeing with a speaker; or said when asking someone to repeat what they have just said.”  (**according to Bing’s definition.)

So when we are paying for our cup of hot chocolate at the 7-11 and take that entire extra 2.6 seconds to place 25 cents change inside a purse and zip it closed before attempting to leave the store, the words, “Excuse me,” have little meaning to my Autistic daughter.  The old hag who shoved past her while saying them meant, “I’m an impatient old bat in dire need of lottery tickets and another pack of cigarettes. Now move your ass!”

So, now that she has been pushed and hurried, she is holding her hot chocolate in one hand and my hand with the other.  As we attempt to exit the store, a young man grabbed the door handle and swung it open widely.  But instead of waiting for us to step through it, he pushed into me as he tried to squeeze past, causing me to bump into my daughter, which caused her to spill hot chocolate onto her hand. THEN he had the nerve to be upset when she screamed from the burn on her hand and turned around and shouted, “YOU FUCK!” at him. He started to argue but I said, “She has Autism….she doesn’t mean,” and then I stopped myself. You know what, old hag at the counter and boy who can’t wait for 1 second to enter a store before the doorway is cleared?  She’s right. You ARE fucks.

Autism awareness organizations are around because YOU “normal” people are too ignorant to recognize disabilities that are not glaring in your faces.  How many “normal” people walk around 7-11 wearing gun range headphones to cut down the noise around them?! OBVIOUSLY, there’s an issue there and this person doesn’t fall into your definition of “normal.”  Do you ordinarily push past the guy with the white cane because he’s taking an extra second to get through the door he can’t see?  What about the people who are speaking in sign language to one another?  Do you get pissy and shove past them when they don’t hear your lame “excuse me” at the check out lane?

Patience is something that everyone could use.  Do I sound impatient?  Well, I am. But this is due to YEARS of having complete strangers walk up and “shush” my kid who is screaming because the lights are too bright and some assistant manager decided to crank up the music playing on the PA system at the grocery store.  I will maintain my usual demeanor, most days, in public but I will no longer apologize to people for my daughter’s outbursts when 9 times out of 10 they contribute to them.  Just because she cannot verbalize what is bothering her does not mean that she is out of line for feeling bothered.  Attempting to understand why someone is upset is a sign of maturity.

I’m not expecting the world to bend over backwards and allow the AU crowd to do whatever they want whenever they want.  All I’m asking is that you take a second before reacting to their Tourette’s-like responses and decide whether that person is in crisis. Sometimes it’s truly just a disability.

Prom Season is Upon Us

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I’m not going to lie to you. We NEED money. Hosting a prom each year is expensive. But STARRY NIGHT PROM is doing everything in its power to continue keeping this event cost-free for the Arlington ISD high school students with significant disabilities and their chaperone. It truly isn’t easy. But here’s how you can help.

Donate: If you could just provide us with as much as you are comfortable with donating, it could make all the difference in the world. Each and every donation, regardless of amount, is greatly appreciated. To reach our secure fundraising site, please click on this link———————————> RIGHT HERE!

Share:  Please share this post. Circulating this blog post among your friends via your social media outlets can assist us in reaching even more potential donors. This can make all the difference in the world. Please click on the Facebook, Twitter, or email links below to help our cause.

In-Kind Donations:  If you own a business or represent an organization that would like to sponsor STARRY NIGHT PROM by in-kind donations of logo-bearing promotional items (such as pens, pennants, t-shirts, hats, refrigerator magnets, keychains, lanyards, drink koozies, etc,) please email me here———————> starrynightprom@outlook.com.

We are also accepting gift basket items to be raffled off during the event, 29 April 2017. If you have a gift basket that you would like to donate for raffle, please contact me at the email address above.

ALL DONATIONS ARE TAX-DEDUCTIBLE. STARRY NIGHT PROM IS A REGISTERED 501 (C)(3) NON-PROFIT ORGANIZATION.

STARRY NIGHT PROM 2017

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This kid right here? He’s having a blast, dancing his heart out at the Starry Night Prom last year.

2017 will mark our TENTH ANNUAL STARRY NIGHT PROM! Can you believe we’ve been doing this for an entire decade? We decided to celebrate that fact by throwing an even better prom this year than we did last year. But in order to do that, we need your help. This prom is run entirely on donations. Yes, that’s right. The invitations, corsages and boutonnieres, decorations, food, DJ, desserts, photography, commemorative t-shirts, swag bags and everything in them: ALL donated or paid for with your donations. Even the people who provide service on this night- all volunteers.

And throwing an event like STARRY NIGHT PROM each year is not cheap. So we’re calling on you to help us out. Please donate to help us reach our $6000 goal and make this magical night a reality for these kids within the Arlington ISD. Just click on the highlighted link below and you’ll be directed to our crowd-sourcing fundraiser site.

CLICK HERE TO DONATE TO STARRY NIGHT PROM 2017!

If you own a business and would like to donate logo-bearing in-kind donation for swag bags, please contact our Vice-President of Donations by emailing her here: starrynightprom@outlook.com

If you have other in-kind donations that you’d like to donate, such as gently used prom dresses or tuxedoes, or if you’d like to purchase and donate food items or gift cards to local grocery or department stores, swagbag items, etc., also please contact our Vice-President of Donations via email: starrynightprom@outlook.com.

Remember EVERY donation is appreciated and we will provide  you with a tax-deductible receipt.

**STARRY NIGHT PROM is a registered 501(c)(3) Non-Profit Organization.

The Doctor is In

I’ve known him all my life. And after my dad, he’s the “adult male” that I would turn to for car maintenance advice, a kind word, a belly laugh in the form of some hilarious anecdote that had  happened that week. Uncle Tracy has been a comfortable constant in my life no matter where the Army sent us throughout my childhood.

My cousin, Wendy, was my best friend/pen pal during all that back and forth moving overseas to Texas to Alabama and back overseas, etc. I felt grounded reading her letters and a sense of normalcy writing back to tell her all about my softball season, how much I hated Algebra II, and which boy I had a crush on that week. I always sent love to her parents and she always sent it back to mine. And for us, there was never any awkwardness. Even though she wasn’t a military BRAT like me, we would pick up right where we left off three years before. We’d run out to play on the zip line that Uncle Tracy had built using the tallest trees in the backyard or play basketball or throw pine cones at each other or at night, jump out from behind a fat bush on the side of the road to scare the crap out of teenage drivers who were speeding up the street and then take off running as they slammed on brakes and cussed at us out the open windows.

When I spent a week with them during the Summer Wendy had gotten her learner’s permit, Uncle Tracy earned a new nickname. We were in his pick-up truck. Wendy was driving. We were in the left only turn bay and she was having trouble with the 3-on-the-tree. Uncle Tracy was patiently bellowing directions from the passenger seat. I was the quiet moron in the middle; head turning left then right then left again as the conversation continued across me. After about 4 light changes from red to green and back to red, Wendy was beyond frustrated as the engine choked and died again. Uncle Tracy stated loudly, for the tenth time, “Wendy, you’ve got to put the damn thing in first gear!”

“It IS in first gear!” she shouted back, red-faced.

“Wendy, if this damn truck was in first gear, we’d already be in the driveway by now. Put it in first gear.”

She violently pulled the shift bar from where it was to neutral and then back to where it was. “It IS in first gear, Daddy!” The light turned green again. She let up off the clutch again. The truck jerked forward and died again. The car behind us started honking again as he was too close to go around us like the cars behind him. The light turned red again.

“Wendy, you’re in third gear. Put the truck in first gear!!”

“Daddy, it IS IN FIRST GEAR!” she shouted back.

Uncle Tracy actually yelled this time, “IF THIS TRUCK IS IN FIRST GEAR THEN I’M A GODDAMN BRAIN SURGEON!”

The dumbass in the middle, sensing the tension and trying to show solidarity with her cousin waved and said, “Hiiiiiiiii, Doctor Tracy!”

They were too pissed off at each other to laugh. She finally found first gear and we went home. When we got  back to their house, I figured I should make myself scarce and then I heard my aunt laughing in the kitchen. I went to get a glass of tea and she handed me a tall cup to take to “the good doctor.” She and Wendy howled with laughter.

I handed him his tea and he just looked at me. Then he laughed and said it was in third. I  told him that out of all the pipefitters in the world, he made a fine brain surgeon. He’s been Dr. Tracy ever since.

 

 

6 Days Left

Starry Night Prom 2015 SWAG BAGS

These are STARRY NIGHT PROM goodie bags from our 2015 prom. These customized backpacks were donated to us by the Elks Lodge #2114 in Arlington, Texas. We stuffed them full of swag for each of our attendees; AISD High School students with significant disabilities. The swag included a customized Starry Night Prom 20-ounce cup, pens, pencils, keychains, compact mirrors, coupons and gift certificates from many local businesses, toys, stickers, magnets, and other cool items. Each backpack also contained a STARRY NIGHT PROM commemorative t-shirt with all of our big sponsors printed on the back.

So all of that stuff inside the goodie bags? FREE for our students who attend. You know what else is free? The meal for each of them (and for one attending chaperone guest per student,) the prom portrait photography, the prom fun photo booth style photography, the boutonnieres and corsages, the beautiful custom made invitations, the dessert fountain, the DJ and big dance floor where they can dance and have a wonderful time. All of this is paid for by the donations of kind and generous people who want to see these kids have a magical Starry Night Prom.

And even though a lot of the swag, backpacks, venue, services including cooking and catering are donated as in-kind donations, we still need money to pay for the photography, DJ, printing of invitations, shirts, cups, decorations, additional swag, and a large portion of the food items that are purchased each year.

Our ongoing FACEBOOK fundraiser event is still active for 5 more days! Facebook has waived all of their usual fees for registered  501 (C) (3) nonprofit organizations with Facebook pages during the #GivingTuesday fundraiser drive. This means that 100% of all donations made via the Starry Night Prom Facebook page will be donated to our noble cause.

Won’t you please consider donating to Starry Night Prom and give these kids their magical night this Spring 2017? All donations are 100% appreciated. Thank you for your support.